openNHS Manifesto

On the 24th of this month we are convening a meeting of MLD researchers, industry, and academia in Washington DC to discuss openNHS, a project we hope starts with MLD but quickly expands to all rare diseases.

We’ve prepared and sent out an openNHS Manifesto┬áto frame our discussions. ┬áPlease read this document and let us know if you have any feedback, questions or suggestions.

You can read more about this project in this blog post.



2 thoughts on “openNHS Manifesto

  1. Pingback: Centers of Excellence for Leukodystrophies and Lysosomal Disease | MLD Foundation Blog

  2. Pingback: openNHS Manifesto – Meeting Report | MLD Foundation Blog

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