openNHS Manifesto

On the 24th of this month we are convening a meeting of MLD researchers, industry, and academia in Washington DC to discuss openNHS, a project we hope starts with MLD but quickly expands to all rare diseases.

We’ve prepared and sent out an openNHS Manifesto to frame our discussions.  Please read this document and let us know if you have any feedback, questions or suggestions.

You can read more about this project in this blog post.

Dean

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2 thoughts on “openNHS Manifesto

  1. Pingback: Centers of Excellence for Leukodystrophies and Lysosomal Disease | MLD Foundation Blog

  2. Pingback: openNHS Manifesto – Meeting Report | MLD Foundation Blog

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