On the 24th of this month we are convening a meeting of MLD researchers, industry, and academia in Washington DC to discuss openNHS, a project we hope starts with MLD but quickly expands to all rare diseases.
We’ve prepared and sent out an openNHS Manifesto to frame our discussions. Please read this document and let us know if you have any feedback, questions or suggestions.
You can read more about this project in this blog post.
Dean
2 replies on “openNHS Manifesto”
[…] and accessible clinical care and research force that network would be. MLD Foundation’s OpenNHS Manifesto offers a peek into how we think pre-clinical Natural History Study collaborations should operate. […]
[…] and academia was convened by the MLD Foundation on June 24th in Washington, DC to discuss the openNHS Manifesto we wrote about in this […]