Categories
General

openNHS Manifesto

On the 24th of this month we are convening a meeting of MLD researchers, industry, and academia in Washington DC to discuss openNHS, a project we hope starts with MLD but quickly expands to all rare diseases.

We’ve prepared and sent out an openNHS Manifesto to frame our discussions.  Please read this document and let us know if you have any feedback, questions or suggestions.

You can read more about this project in this blog post.

Dean

Facebooktwitterredditpinterestlinkedinmail

2 replies on “openNHS Manifesto”

Leave a Reply to Centers of Excellence for Leukodystrophies and Lysosomal Disease | MLD Foundation Blog Cancel reply

Your email address will not be published.

This site uses Akismet to reduce spam. Learn how your comment data is processed.